Its been a while...

Hi Everyone.. so Its been a while and Im sure your all hanging from my last post haha.
Ok so I had an MRI and the mass was a blood clot. They things its caused by the port, so I will be getting injections for like..umm ever. They were suppose to move the port up out of the heart, but have yet to do that. Its crazy that they caught it in time! could have been a lot worse since its in my right atrium(which goes to the lungs)

So, since Ive had another TEE and the clot seems to have disabated, but that does not mean I can stop the blood thinners. I go for another MRI in a month to check up on it.

I went to a hemotologist appointment. It was my first time seeing this doctor. He was ok, has some weird ideas and has only had one other HES patient. He think I should be on chemo as well...mostly to get me down on the prednisone. Im really not sure what Im going to do at this point. Im waiting for him to discuss things further with the other doctors

I think thats that.. for an update!